I Still Do

March 14, 2010

Global Conversations about AD

What was so exciting about speaking at the ADI conference in Greece (Alzheimer’s Disease International)—in addition to the programs and the vibrant city of Thessaloniki—was the opportunity to talk with other participants and hear about AD programs throughout the world.  I spoke with people from Iran, the Netherlands, Israel, New Zealand, Australia, Puerto Rico, Ireland, the UK and many other countries.   The interactions were inspiring, particularly since there’s attention being paid globally to AD that we in the U.S. can emulate.

And, speaking of inspiring, there is a television commercial from the U.K. that has wowed me.  It’s very simple—just a single dementia patient standing against a white background and talking about having—and living—with AD.  The message is: don’t run away from me, or fear me, when I tell you I have dementia.  I’m a real person, with thoughts and feelings, and here I am.  Why don’t we have similar spots in the U.S.?  I’m going to be asking that question of influential people in the field when I get back to the U.S.

I was thrilled with the response to my photographs and my book I Still Do: Loving and Living with Alzheimer’s.  My presentation centered around my experiences  caring for my husband, Ed, and the power of art to help people understand viscerally, and to relate to, those experiences and to connect with my husband’s story.  By extension, viewers and readers understand better the layers of the AD journey.

In the meantime, I’m enjoying the friendly people of Greece and will share some photographs when I get home.

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